Who We Are


We are an independent not-for-profit, community based organization, dedicated to improving the quality of life of persons with Sickle Cell Disease.
CSCF was founded in 2001 with the guidance of our Patron Dr. K.C. Wafula and a group of parents who had children with Sickle Cell. They founded CSCF out of frustrations that faced both adult and children sickle cell disease patients as well care givers. The motto of the organization, "Turning Sickles into Smiles" aims to cope with the overwhelming obstacles and emotional challenges that are a part of living with a serious, chronic disease that is under-funded, undervalued and the target of much ignorance, prejudice and discouraging empty complaints and rife stigma.

Nairobi

Embassy House, Nairobi
0724 443 118
0724 201 946
nairobi@childrensicklecell.foundation

Homabay

Homabay
0726 796 991
homabay@childrensicklecell.foundation

Mombasa

Mombasa
0721 927 950
mombasa@childrensicklecell.foundation

Siaya

Siaya
0721 912 156
siaya@childrensicklecell.foundation

Busia

0703 987 993
busia@childrensicklecell.foundation

Mumias

mumias@childrensicklecell.foundation

Bungoma

Kory Family Hospital, Bungoma
0710878897

Kisii

Kisii Town
0725 158 151
0722 602 784
kisii@childrensicklecell.foundation

Kuria

Kuria Town
0725 158 151
0722 602 784
kuria@childrensicklecell.foundation

Selina Achieng' Olwanda

Chairperson

Foulta Kwena

Vice Chairperson

Peggy Odoyo

Secretary

Dr. K.C. Wafula

Patron and Scientific Advisor

Ken Achola

Board of Trustees & Fundraising

Kathleen Anangwe

Board of Trustees

Steve Ndunde

Board of Trustees

Sam Mbunya

Lead Researcher & Board Member

Duncan Ogweno

Board of Trustees and ICT & Outreach

Sickle Cell Disease

What is sickle cell disease?

Sickle cell disease refers to a group of inherited red blood cell disorders. It is the most common genetic disease in the Kenya with an estimated 60,000 Kenyans having the disease.

Sickle Cell Image

Image of a Sickle Cell. (fig. 1-3)
  • Normal red blood cells are round like doughnuts, and they move through small blood tubes in the body to deliver oxygen. (fig.1)
  • Sickle red blood cells become hard, sticky and shaped like sickles used to cut wheat. (fig.2)
  • When these hard and pointed red cells go through the small blood tube, they clog the flow and break apart. This can cause pain, damage and a low blood count, or anemia. (fig.3)

What is sickle cell trait?

A person with the sickle cell trait does not have ( and will never have) sickle cell disease. However, the presence of the trait may impact his/her children ( see: How do you get sickle cell disease?). A person with the trait carries one abnormal hemoglobin gene inherited from one parent ( S, E, C, etc.) and one normal hemoglobin gene from the other parent ( type A). Typically, sickle cell trait is the presence of hemoglobin AS.

How do you get sickle cell disease?

Sickle cell disease is not contagious; you cannot "catch" it. You inherit it from your parents. If, for example, one parent has normal hemoglobin ( type AA) and the second parent has abnormal hemoglobin ( type AS, or the sickle cell "trait"), there is a 50% chance that each child will have the sickle cell trait, but they will not have sickle cell disease ( type SS). Sickle Cell inheritance chart.

How do you get Sickle Cell?

Sickle Cell Chart

If, however, both parents have type AS hemoglobin (one normal and one abnormal), there is:

  1. a 25% chance that the child will have sickle cell disease,
  2. a 50% chance that the child will have sickle cell trait, and a
  3. 25% chance that the child will have neither the disease or trait.

These chances are the same for each child.

Are there different types of sickle cell disease?

The three most common forms of the disease in the United States are: Hemoglobin SS or sickle cell anemia Hemoglobin SC disease Hemoglobin sickle beta-thalassemia (a form of "Cooley's" anemia) Each of these can cause very painful "crisis" episodes and in severe cases lead to stroke, heart attack and death.

Who gets sickle cell?

Sickle cell disease affects many tribes and areas of Kenya. The Luo, Kisii, Luhya, Teso, Giriama, Taita, Miji-Kenda, Kambe and Kalenjins. However, it disproportionately affects Luos especially from Homabay area of Nyanza region. Approximately 1 out of 400 Luos has the disease.

How can I be tested?

A simple, painless blood test called the hemoglobin electrophoresis can be done by your doctor.

When should I be tested?

Get tested now for sickle cell! If you are of child-bearing age, you and your partner should be tested immediately so that you can make informed family planning decisions.

How can I help?

If you do not have sickle cell disease, you can help those who battle this disease by: donating blood to your local Red Cross. Sickle cell patients often need multiple blood transfusions to alleviate the painful crisis episodes. being an advocate if your loved one experiences a crisis and enters the hospital. Health care staff may or may not be familiar with sickle cell disease. supporting local and national efforts to increase awareness about the disease.

Past Events


  • Strathmore Sickle Cell Symposium - 2017

    20 Dec, 2017

    Strathmore University - Business School

    Dr. K.C. Wafula giving his presentation

  • Oasis Healthcare Group - CSCF Pre-launch meeting

    30 Aug, 2017

    Oasis Doctors Plaza - The Green House, Nairobi

    Oasis Healthcare Group staff and CSCF board at the pre-launch

  • Sickle Cell Exchange Forum

    02 Aug, 2017

    Strathmore University - Business School

    Prof. Inusa Baba (In spectacles) contributing his point in the group discussion given by Dr. Carolyn Rowley.

Ready to support us ?

Donate to Children Sickle Cell Foundation


CSCF thanks you for your interest in donating to support its efforts to provide better life for people living with Sickle Cell Disease.

We accept donations via the methods below:

  • Lipa Na MPesa
    Buy Goods and Services
    Till Number 331752
  • Cheques drawn in favor of CHILDREN SICKLE CELL FOUNDATION
  • Buying our merchandize at the CSCF shop

Your donation goes a long way to support us in the following ways:

  • Buying crucial drugs like Folic acid, Pen V, Hydroxurea, Zinc, DF118
  • Buying food for the very needy Sickle Cell disease patients in our various branches
  • Providing transport for needy patients to travel to and from Sickle cell clinics in Baraka Hospital, Busia, Kilifi and Homabay
  • Paying rent for the CSCF office

Donate

Sickle Cell Disease is a painful condition affects everyone from babies through adults. Donations always help CSCF achieve our goals. Please consider a contribution today. Watch Video

Become an Individual Member

We are only able to fulfill the mission and vision of CSCF with support from individuals who are passionate about bettering the lives of Sickle Cell Disease patients. It is imperative that we have a strong network of dedicated people in order to make a far reaching and long lasting impact. Our Individual Members are the backbone of this network. By working with your local CSCF Member Organizations, you will be positioned to have a direct impact on the lives of Sickle Cell Disease patients, learn more about the Disease, and share suggestions and concerns with a local and national network of patients, providers, educators, media, government agencies, etc. CSCF urges you to join as an Individual Member in order to make a lasting difference and to enjoy the benefits offered. Please click here for Membership Benefits. Please click here to apply for Individual Membership. If you are with a Sickle Cell Disease organization and are interested in becoming a Chapter of CSCF as a Member Organization please click here. If you are with an organization that is not a Sickle Cell Disease organization, but work in part within the Sickle Cell field or in a related field, and are interested in becoming an Affiliate CSCF Member Organization, please click here.

Become a Corporate Partner

CSCF is grateful for the support of the many corporations and businesses across Kenya that contribute to our mission of improving the quality of health, life and services for individuals, families and communities affected by sickle cell disease and related conditions, while promoting the search for a cure for all people in the world. Become a Corporate Partner today.

Volunteer

There are always volunteer opportunities at CSCF for assistance with public relations and event management to website maintenance and more.

Become an Advocate

Advocate volunteers watch over and advocate for programs, services and research efforts that affect the entire sickle cell community.

Let's Get In Touch


Children Sickle Cell Foundation of Kenya is reachable via the following offices:

P. O. Box 64607-00620, Parklands,
Naiorbi, Kenya

Nairobi: 0724 443 118 or 0724 201 946

Busia: 0703 987 993

Homabay: 0726 796 991 or 0720 829 082

Kisii/Kuria: 0725 158 151 or 0722 602 784

Kisumu: 0723 477 996

Mombasa: 0724 099 569

Mumias: 0721 705 075

Siaya: 0721 912 156

Contact us via email

Your Name:


Your e-mail:


Subject:


Type verification image:
verification image, type it in the box

Message: